Tuesday, August 18, 2009

Failing fast

I returned from the US yesterday. We were on vacation in California, and hearing that Father was failing fast we spent the last few days with him and Mother in Cortland. As you know, he was diagnosed with multiple myeloma in february last year. After numerous complications he seemed to respond to treatment and from July to May had 10 good months. In May he began to experience episodes of weakness and testing showed the myeloma had invaded the central nervous system. This is a very rare complication and the prognosis is bad. Since then he has been getting progressively weaker. He has experienced a rapid decline in the last 2 weeks. From still going upstairs to bed 1 1/2 weeks ago to not being unable to bear weight more than a few seconds with support on thursday. He hardly speaks anymore, though we think he hears and listens. He mostly lies with his eyes shut. Must be fed and otherwise cared for in bed. The worst is that he seems to have a good bit of pain. It was a huge shock to see him like this. Mother is trying her best with the help of hospice. I was there for a few days and my brother Roland has returned from California to stay until the end.
We don't think he will live more than a few more weeks, and we all agree that we will try to make it possible for him to die at home. It is what he wants. Hospice sends an aide 2 hrs a day, and have helped with equipment, physical therapy consults and a nurse is on call 24/7. The church and the waldorf community are ralleying to help mother by bringing food and sitting with Father so that she can get away to swim and do errands.
I have returned to Norway, but will go back on short notice when they say the end is near. I wish I could have stayed on. There is so much I could have done to help!

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